Tuesday, March 10, 2009

Trying not to panic

Overall, this weekend was great. Little Bug got to see fish a few times and also got some new fish books and toys from the Goodwill. We had Jessica and Peggy over and Little Bug made a lot of progress with them. He shared, talked to them, and let them touch him.

Unfortunately, there was a dark cloud hanging over our weekend. Last week, I found a bump on the back of Little Bug's head and figured it could be because he had a cold or bumped his head. I figured I would just watch it. He allowed Peggy to hold his hand and touch his head- which is huge- and Peggy noticed that the lump was still there.

Little Bug missed school yesterday so that we could go to the doctor's to have it checked out. Dr. S was incredibly concerned. Given Little Bug's history- of having a tumor on the other side of his face- he is quite concerned that another tumor has developed as Little Bug is experiencing the symptoms on the right side of his face which match the confirmed behavior of the left side- which has the tumor.

This is hard to swallow and hard to not panic. It brings back a flood of memories- when he was 2 months old, they told us they weren't sure if he had cancer, of seeing the entire left side of his face sewn back on, of 6 months of left side facial paralysis, of many nights of worry and fear.

We can't get into his surgeon for a month and a half. It is hard not to know what is going on for a month and half. I know it sounds incredibly short, but its not.

At least because of his difficulty processing pain, it doesn't hurt too much. He has only stated that his cheek hurt twice and I think that is only because we were looking at and remarking on it.

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