So before I go into the details of what has been this morning, I want to first point out the many steps forward Little Bug has taken this weekend:
- He wanted to play with other children at the beach. This is big for him. Normally, he tries to jack their toys and run, leaving them with their mouths hanging open. Not on Saturday. He was all about being close to them and wanting to join in. While he didn't make eye contact or talk to them, the fact that he was in very close proximity- 1 foot- and stayed there peacefully is huge. GOOD JOB BUG!
- HOUSTON, We have pretend play. I repeat, pretend play. So in case you are unfamiliar with ASD, a lot of kiddos on the spectrum have a really hard time with pretend as it deals with intangible and non literal ideas. But, Little Bug did it. He found a chunk of wood and made it swim in the ocean and called it fish. This is big for him. Normally, if it wasn't an actual fish- toy or otherwise, it would not have been made to swim- only chucked back to the waves to once again be regurgitated to the shore.
- He shared. We went to a good friend's house this weekend. Now, we have been there more than 6 times for at least 4 hours each time, but each time he acts as though he has never been there before and has never seen these people. This time, after warming up, which didn't take as long as usual, he shared with them. He let them touch him- huge, a lot of people would get in serious trouble for touching him. He let them tickle him. This is an amazing accomplishment for him. It also speaks volume about this family- he knows they care and can feel it.
(NOTE: RANT BEGINS NOW, so for the squeamish, please run.)
Now, I received an email from our FRC this morning regarding the wizard's wonderful diagnostic screw up. She let me know that she received the letter from him, but Little Bug's diagnosis needs to be on paper before our meeting in less than 12 hours with the Birth to Three center. Birth to Three has a very intensive Autism program, but children *must* be diagnosed prior to being recommended.
So, what I am being told is: THE WIZARD'S FRACKING MISTAKE MAY COST MY CHILD'S THERAPY TO BE DELAYED. *queue ominous, you better fracking run music* The wizard and his staff got off light when DN called. DN is my better, more patient, and less quick to anger half. He is also much nicer than I am. Ever watched National Geographic specials that include mama animals- elephants, hippos, tigers- and their babies? Ever watch what happens when the baby is threatened? Lets just say this- a mama tiger ain't got shit on me.
In exactly 1 hour and 31 minutes, I will be talking to the wizard. We will be picking up Little Bug's diagnosis in hand today so that we can take it to the center today. I will not settle for less as no child deserves less than the bare fracking minimum.
On the upside, we have been invited to attend a weekend class for therapists and parents of children with Sensory Integration Disorder. The city is going to pay for it. I simply have to work out the work schedule and Little Bug sitting schedule with DN and MA.
Hopefully, we will have a positive outcome from today's meeting with Birth to Three. Stay tuned.
1 comment:
Haha...tiger protecting their young....good comparison lol.
I'm glad that Little Bug had a good weekend!
I hope things went well with the doctor and the classes work out all right.
TTFN
-Bri
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